There was a time in my life not so long ago ‘though it seems like decades, that I didn’t think about cancer or hospitals or caregivers and patients daily. In fact, I think I probably went several days or possibly weeks in a row without thinking about these subjects. Why wasn’t I more aware?? I… Read More Birthday wishes
Today hasn’t started off very well. Last night was of those hospital nights where sleep just wasn’t destined to happen. It wasn’t for lack of preparation. We knew we would be up early as B was supposed to be taken down for dialysis at 6am, so I got the diffuser going at 9 with sacred… Read More Ramblings & Gratitude
“Are you warm enough, honey?” I hear her as they round the corner in front of where we are waiting to be seen at the 10th Floor ATC. “She” is a 60 something petite woman pushing her husband and a couple of bags in a wheelchair. If he answers her, I don’t hear. He has… Read More Salute
One of the many things post transplant patients face is a new way of looking at food. The saying “eat to live, not live to eat” most definitely applies. Not only is a transplant patient fighting new baby-like taste buds, he is also still dealing with the harsh chemo side effects which leave nausea, diarrhea,… Read More Two recipes-one for him and one for me….post transplant
You know that feeling when you’re so excited about your husband coming home from the hospital after his stem cell transplant, but when it actually happens you are worried about all the new things YOU need to think about like his meds, eating, drinking, maintaining electrolytes, germs, bloodcounts and GVHD, and you also know that… Read More Getting used to a new “new normal”
I don’t think of myself as especially superstitious; however, for the next two days being particularly careful with mirrors, avoiding walking under ladders, and watching for butterflies in my garden for good luck couldn’t hurt, right?? We found out today that Bobby’s white blood counts rose for the 3rd day in a row!! Woo hoo!!… Read More Knock on wood
Link to Robin Roberts’ WSJ interview I am a big fan of Robin Roberts. When my husband was diagnosed with MDS, we had to quickly move to Houston to begin treatment. I started reading anything I could get my hands on about this relatively rare form of leukemia. There’s not a whole lot out there… Read More TWO interesting reads….